It was great to meet a big group at the young adults clinic in Oxford yesterday. A bit older than I expected, and where were the girls and women, but their tales were the same as everyone tells really. So I asked them about looking up results online, and several of them had access, but most only used it sometimes.
Healthy behaviour probably. People who cope well with long term kidney disease seem to go through phases of paying close, even intense attention to getting things right, allowing them to move on to periods where they can just lead normal lives.